I'm so excited! And I just can't hide it! I'm about to lose control and I think I like it!
Now that I got that out, today was round 8 of 8! I am done with chemo!!! My counts were looking good, so I got the go-ahead to finish. I spoke with my oncologist beforehand about some numbness I have in my right hand. Before, I had tingling in my fingertips. Now, I have no feeling in my index and middle fingers. It makes getting my blood draw nice because I can't feel it at all, but it gets frustrating when I'm trying to type or write or pick something up and drop it because I didn't have a good grip. She said it's a normal side effect of the vincristine and since it's my last round, she didn't want to change my dosage. She said to try not to worry too much about it because it's usually temporary (phew!) She also scheduled my follow-up for my PET scan. Scan on June 26th then meeting with the oncologist and the radiological oncologist on July 3rd (just in case she suggests radiation therapy so that I can ask questions). Here's my thing, though: if by some miracle the chemo didn't make me sterile, the radiation will, so is surgery an option? Her answer: yes! She even suggested that I call and make an appointment with the gynecological oncologist who did my early testing (yes, the one with the Bieber haircut!) because he does hysterectomies. She said to make the appointment now so I don't have to wait come July. So best case scenario: my cancer's all gone and I don't have to do anything else. Worst case scenario: my cancer's mostly gone and I get a hysterectomy. Let me tell you, I'm not very upset about that. You're taking out the only parts of me that had cancer? It'll make my probability of recurrence go down? No more periods? Sign me up!
My time in the chair was pretty short today. They had me in and out by 2:30, the earliest yet! I had some really nice conversations with some of the ladies in the other chairs. We had the nurses rolling! We were talking about how our hair was starting to come back, how it made us worry that the chemo wasn't working, how one of the ladies tried false eyelashes and couldn't understand how some people did that every day, how unfair it was that I'm still shaving my legs! After they left, two more ladies came in and I got to talk with them about school because they both worked in the school system here before they started treatment. I had some really fantastic conversations with the nurses about their children and some other things. It made me realize that I'm going to miss them. I knew from the beginning how wonderful they were, but I thought I'd be so happy to be done with chemo that I wouldn't miss anything about it. I was wrong. I told them that I still had appointments every week for my CBC and that I lived close enough to visit. They weren't getting rid of me that easily!
"What cancer does is it forces you to focus, to prioritize, and you learn what's important. I mean, I don't sweat the small stuff." ~Gilda Radner
Thursday, May 31, 2012
Tuesday, May 22, 2012
Down for the Count
Before I start, I have to say that I have been SO lucky so far. I made it through 7
treatments with only one cold (which was no fun), but working with germy little
kids all day, it could have been MUCH
WORSE. Right after round 7, Chase got a stomach bug from his cousin and it
was also going around school. I had 7 kids out with it. Needless to say, I
couldn’t resist anymore.
I stayed after school late on Tuesday for a training (which
was fantastic!) and was feeling fine. After I got home, I was feeling a little
tired, but I figured that was just because I had such a long day at school. Wednesday
morning, I woke up at 5 puking my brains out. Needless to say, I put in for a
sub and stayed home, hoping for a 24 hour bug that would pass quickly. I slept
in 2 hour increments all day, waking up to get sick before falling back asleep
again. Water and juice wouldn’t even stay down. I was able to keep down a
little sip of Gatorade each time I got up, but that was it.
Thursday, I woke up and was still getting sick. Called in
for a sub again then took my temperature. It was 100.3 (I don’t ever get a fever!) My oncologist told me
that if it ever got over 100.5 to call. Since I was close but not over, I just went back to
sleep. When I woke up 2 hours later, I checked it again and it was 102.4 so I
called the doctor. When I told them everything that was going on, they asked if
I could come in right away. Well, right away ended up being 45 minutes later
because I was getting sick again. Fun, fun! I get to the office and the first
thing they do is give me a mask because they don’t want me sharing my germs
with the other cancer patients. They do my weekly blood draw then I hear the
nurses discussing my results. I didn’t catch much, but I did hear the word
‘critical’ more than once. Never a good sign! Then they bring me back to see
the doctor (who I only see before my treatment… another not-so-good sign!) She
tells me that my white count is 0.76 (3-4 is considered normal in chemo
patients, hence one ‘critical’ comment), my pulse was 157 (hence another
‘critical’ comment), and that she wants me to go to the hospital. NOOOOOOOOOOO!!! I do NOT want to go
back into the hospital. Isn’t there anything
else we can do? She went and checked their stock of antibiotics, thinking that
they could maybe give them to me there, as well as a potassium and magnesium
infusion since those counts were ‘critically’ low as well. They didn’t have
what she wanted me on, so she sent me to the hospital. As much as I hated being
in there, I’m really glad that I went. I was feeling very weak and had lost 11
pounds in 2 days because of the whole getting sick thing. The first thing they
did was hook me up to IV fluids (through my port… I’m not sure if I’ve ever
said how glad I am that I have that!). By 7 that night, I was feeling so much
better. I hadn’t thrown up in 6 hours, though my stomach was still upset. The
nurses took another blood sample, and my white count had increased slightly.
On Friday, I woke up feeling like myself again. My primary
care doctor and my oncologist both came and visited me. I was told that I would
have to stay until my white count was over 2.5. Boo! So I spent the day in bed
doing school work. I made Chris go to Disney because it was opening day of Star
Wars Weekends and there were some pins that he wanted. Our original plan was to
go as a family with both sets of grandparents on Friday and stay til Sunday. My
hospital stay ruined that, but I wasn’t about to let him miss out on the pins
if he could go! I had Game Show Network on all day, and let me tell you, I
would SO win some big money if I went
on a game show!
The best medicine! |
Sunday, my white count is 3.89. I’m busting out of this
joint! Major bummer, though: the doctor and the oncologist both tell me that I
shouldn’t stay at home until Chris isn’t sick anymore. I finish my book while
I’m waiting to be discharged (why does
that always seem to take forever?!?) Mom drives me home so I can grab work
clothes, my meds, and a few other essentials before I go to sleepover camp at
Mom and Dad’s. I got them to watch Star Wars with me, so that was fun! I also
had my dinner of choice and one of my
Dad’s delicious cakes, so it wasn’t too bad (even though I missed my husband
and my bed!)
On Monday, I went back to work. My principal came through my room to ‘see if it was true.’ My response: ‘Huh?’ He explained that he heard I got out of the hospital yesterday and was back at work today and he didn’t believe it. He called me ‘amazing’ more than once (which I’m not, but it was nice to hear!) He also said that I’m crazy because I told him that I would’ve been there with my IV pole if they would’ve let me. I just hate missing school, especially this time of year because I’ve got so much to do with them. I got Chase back on Monday afternoon, which made the day even better! We got his playpen and he joined in our sleepover. Dad bought him a pair of Crocs, which he insisted on wearing with his pajamas while boogying along with Dancing with the Stars.
Tuesday, I finally get the news I’m waiting for. Chris is
feeling better, his fever is gone, and he’s not getting sick anymore. We’re
going home!!! As much as I love my parents, I was so happy to be back in my bed, using my shower, with all of my
things. Most of all, though, I was ecstatic to have my family together again! I
hate when this cancer takes time away from us being together. I understand that
sometimes it’s necessary, but that doesn’t mean I have to like it!
Friday, May 11, 2012
Round 7 *ding ding*
Round 7 actually starts on my favorite non-holiday day of the year: May the 4th. May the 4th be with you! (I wait all year to be able to use that!) Anyway, after 3 more rounds of chemo, my oncologist scheduled me for another CT scan to see how things were progressing. I wouldn't get my results until the following Thursday when I met with her. Well, knowing that as soon as she signs off on the paperwork, I can view it online, I snuck a peek on Monday. BIG MISTAKE! I read the report which showed that the measurements from the March scan were 6.4 x 5.9 x 5.3 cm and the measurements from the May scan were 6.3 x 5.1 x 5.4 cm. Needless to say, I freaked out a bit! I mean, if it's not working, why am I even doing it? And more importantly, if it's not working, it makes me so angry that I've been giving up all this time with Chase. And what happens now? Surgery? Radiation? Different chemo? Ugh...
Well, Thursday came and I got my finger stuck then made my way back to see the doctor. Imagine my shock when she was happy with the results! She started by pointing out that it's not growing and that it hasn't moved anywhere else. Then she tells me that the measurement isn't the size of the tumor, it's the size of my uterus. Apparently, the first and last numbers are pretty close to normal and the middle one is the one that shrank the most, so she felt that was a positive. She also reminded me that I have fibroid tumors which can also be causing the abnormal middle measurement. She recommended another PET scan (which won't happen until June because insurance only covers one every three months... GRR!) She said that will give us a much clearer understanding of what's going on because it actually measures the cancer cells and their activity. When I asked her what we'd do if the PET scan showed that the chemo didn't work, she said she'd rather not worry about that unless it becomes an issue. Yet another big relief! And she kept May 31st as my last chemo treatment, so YAY for that!!! The scan also showed that I have hydronephrosis in my left kidney. Basically, my kidney isn't draining the way it should. When she brought that up, I told her my three months was almost up for my next stent exchange. Really looking forward to that...
Chemo went well. Same old, same old (which I am totally NOT complaining about!)
Day after, I slept til 8, cleaned out my closet (top to bottom) and all of my drawers, and spent time trying to ward off my son (which you all know how much I hate!) It was especially hard today because he gave me my Mother's Day present early. He and Chris had been looking at some things online and he got really excited about this pair of Mickey earrings and a matching necklace. Chris said the ones he picked out were red, but he got the blue ones because it's Chase's birthstone. I LOVE THEM!!! And Chase was so proud! He brought me the box, let me open it, and kept pointing at them and going "oooooh!" Then when I took them out, he took the earrings and held them up to his ear, then mine, then his, then mine. He also showed me where the necklace goes. He about breaks my heart, though, when he tries to give me a kiss and I have to tell him no. So today, we blew kisses to each other instead. He seemed pretty happy with that! Only 18 more hours until I can get my hands on him and smooch him to pieces!
Got my shot at 3 and that really slowed me down, as usual. Was able to run to the store, make dinner, and put away the dishes before the ache set in. Took some Tylenol and got good and comfy on the couch, which really makes a difference! Chris even got out the heating pad and hooked it up on my side of the bed, just in case I need it during the night. Sometimes I really don't know how I got so lucky!
Well, Thursday came and I got my finger stuck then made my way back to see the doctor. Imagine my shock when she was happy with the results! She started by pointing out that it's not growing and that it hasn't moved anywhere else. Then she tells me that the measurement isn't the size of the tumor, it's the size of my uterus. Apparently, the first and last numbers are pretty close to normal and the middle one is the one that shrank the most, so she felt that was a positive. She also reminded me that I have fibroid tumors which can also be causing the abnormal middle measurement. She recommended another PET scan (which won't happen until June because insurance only covers one every three months... GRR!) She said that will give us a much clearer understanding of what's going on because it actually measures the cancer cells and their activity. When I asked her what we'd do if the PET scan showed that the chemo didn't work, she said she'd rather not worry about that unless it becomes an issue. Yet another big relief! And she kept May 31st as my last chemo treatment, so YAY for that!!! The scan also showed that I have hydronephrosis in my left kidney. Basically, my kidney isn't draining the way it should. When she brought that up, I told her my three months was almost up for my next stent exchange. Really looking forward to that...
Chemo went well. Same old, same old (which I am totally NOT complaining about!)
Day after, I slept til 8, cleaned out my closet (top to bottom) and all of my drawers, and spent time trying to ward off my son (which you all know how much I hate!) It was especially hard today because he gave me my Mother's Day present early. He and Chris had been looking at some things online and he got really excited about this pair of Mickey earrings and a matching necklace. Chris said the ones he picked out were red, but he got the blue ones because it's Chase's birthstone. I LOVE THEM!!! And Chase was so proud! He brought me the box, let me open it, and kept pointing at them and going "oooooh!" Then when I took them out, he took the earrings and held them up to his ear, then mine, then his, then mine. He also showed me where the necklace goes. He about breaks my heart, though, when he tries to give me a kiss and I have to tell him no. So today, we blew kisses to each other instead. He seemed pretty happy with that! Only 18 more hours until I can get my hands on him and smooch him to pieces!
Got my shot at 3 and that really slowed me down, as usual. Was able to run to the store, make dinner, and put away the dishes before the ache set in. Took some Tylenol and got good and comfy on the couch, which really makes a difference! Chris even got out the heating pad and hooked it up on my side of the bed, just in case I need it during the night. Sometimes I really don't know how I got so lucky!
Subscribe to:
Posts (Atom)